Why Not Allow Bone Marrow Donors To Be Compensated?
The feds are fighting against it, equating it with paying for organs, says a WSJ editorial.
Congress banned paying for or selling organs like livers and lungs in 1984 but bone marrow is a connective tissue that regenerates naturally in a healthy body. Donations can be made through an outpatient procedure that's much like donating blood:
The technique is less invasive than egg donation and has none of the risks associated with kidney or liver donation. Unlike blood donors, however, marrow donors cannot be compensated, which has led to shortages for patients with life threatening blood diseases and a waiting list of some 13,900.In 2009, the Institute for Justice sued on behalf of Maine resident Doreen Flynn, whose three children have a disease called Franconia anemia and will most likely need bone marrow transplants to survive. In 2012's Flynn v. Holder, the Ninth Circuit agreed, noting that new technology and the ease of marrow donation put the ban wholly out of step with the purpose of the organ donation law.
The Justice Department petitioned for rehearing en banc, insisting that marrow transplants should "not be subject to market forces." When the Ninth Circuit declined to rehear the case, the Administration mobilized HHS, which has proposed a rule that would overturn the Ninth Circuit and define marrow extracted from the bloodstream as an organ. The purpose, says the rule, is to "ban the commodification" of bone marrow used in transplants, "encourage altruistic donations, and decrease the likelihood of disease transmission resulting from paid donations."
None of these arguments stands up to scrutiny. If banning donor compensation encouraged altruistic donations, it would already have done so. The ban has been in place for decades and the result is chronic bone-marrow shortages, which have disproportionately affected minorities who have a harder time finding a donor match.
Should paying for marrow transplants be allowed?
How about paying for organs?







I don't see a problem with paying for bone marrow or organs or other bodily fluids/components. Ideally people would be altruistic and donate out of the goodness of their heart, but it doesn't work like that in this economy and society. I would strongly strongly recommend that it be strictly regulated.
Katie at November 25, 2013 4:13 AM
I have zero problem with allowing adult living donors of marrow, kidneys and liver-portions to be compensated. We already pay for plasma "donations".
Jenny Had A Chance at November 25, 2013 4:17 AM
I absolutely believe that people should be compensated. I may need bone marrow or an organ some day. I'd like them to be available. Compensation is important because someone may want to give for altruistic reasons, but be unable to do so because they would need extra support during their recovery or it might lead to job insecurity.
My only concern about compensation is that is would be meager - just enough to compell the poor to do it while costing them dearly. If course, this isn't the case with bone marrow - a very low risk procedure with no long-term cost.
My fantasy is that young healthy women could be compensated for their extrodinary genes through egg donation. It could be women's chance to make the big bucks Ike Tiger Woods or Roger Federer, especially if they also carry the baby. That is arduous athletic event that is best done during the peak of condition.
Jen at November 25, 2013 4:52 AM
I used to support this until it was pointed out to me that that made your bone marrow, liver, and that spare kidney into "assets." Knowing bankers the way I do, I have concerns that this could lead to LOSING them in bankruptcy.
Lamont Cranston at November 25, 2013 4:58 AM
It, again, is tied into healthcare ("insurance") costs.
Consider if I donate a kidney, now, and am handsomely compensated for that. And later have some sort of kidney disease that would be benign with two but requires intervention because I have only one, then... who pays for that? As of now, Obamacare (the rest of you guys) would.
That's the problem I have with pay for organ donation.
No problem at all with paying for bone marrow, blood, plasma - anything that in a reasonable time grows back. Renewable resources, so to speak.
flbeachmom at November 25, 2013 6:24 AM
I think that's not quite right, Lamont. The act of going through the procedure---particularly with bone marrow, as it regenerates---is (or could be) what is compensated. The organ or marrow itself itself is not sold. So it's more like contract work than selling an asset. Bankruptcy court can't force you into plasma donation (which is still legally called donation; the donor's time and travel is what is paid for) anyway, right? Or force you into work as a model or porn star or prostitute (where legal) or to be a paid participant in medical research or donate eggs?
Jenny Had A Chance at November 25, 2013 6:32 AM
Good concept,bad idea. I can just see the offers of "get cash now! Sign up with us for promise of use of your--(kidney, heart, lungs, whatever)in the future!"
Then comes the car wreck or disease that renders the promised organ unusable, you die, they want their money back, go after your family,etc.
Or else you need it for a beloved family member but you've already made an agreement, so your mom has to go through the process of getting somebody else's organ, etc.
Or you marry someone whose religion forbids such things, and so you don't tell them you already agreed, etc...
Oh, it'll happen.
Pricklypear at November 25, 2013 7:55 AM
Could this be as easy of almost nobody knowing you CAN donate bone marrow, or at least not knowing it was as common as this makes it sound?
The last time I heard about bone marrow donation was that recent story about the football player missing a championship game to donate for some kid he'd never met. The story implied (or at least I inferred) that the process was at least complex enough that you would miss work. I always assumed it was fairly complex - any stories I've ever seen about makes it sound like it's fairly uncommon..
If indeed it's as easy as you say, I could see paying for it not being an issue. I just don't think it'd ever get as common as blood donation
Vinnie Bartilucci at November 25, 2013 10:01 AM
How about paying for organs?
Not allowed. The rich wouldn't have to wait and suffer like the rest of the people. Can't have that.
Of course, in practice they still don't. Look at how fast Steve Jobs got his replacement organ (though fat lot of good it did him).
V-Man at November 25, 2013 12:11 PM
Amy Alkon
http://www.advicegoddess.com/archives/2013/11/25/why_not_allow_b.html#comment-4077635">comment from V-ManSteve Jobs might've survived if he'd used modern medicine instead of healthfood store voodoo. Tragically ironic that one of the tech leaders of the modern age was anti-science in deciding his care.
Amy Alkon
at November 25, 2013 12:21 PM
If you can be compelled to pay for health care, when it is labeled as a "tax", why can you not be compelled to donate an organ, once it has an agreed-upon market value?
Radwaste at November 25, 2013 2:41 PM
Because, if they weren't compensated, it would be a "sale," not a "donation."
Patrick at November 25, 2013 3:36 PM
Being a bone marrow donor is more risky and expensive than you make it out to be. While I have no problem with compensating donors financially, after all you pay the doctors and the hospital for their contribution, I would never personally donate to anyone other than a close family member.
The risks are too great, for any hospital procedure. Why?
Prions, c-diff, staff, and a whole host of other antibiotic resistant bacteria that breed in hospitals and operating rooms these days.
Isab at November 25, 2013 3:55 PM
I think we will cure AIDS and then have Prions as our next foe.
Something you can't kill because its just a fucking protein.
Can't wait.
Ppen at November 25, 2013 5:58 PM
"Because, if they weren't compensated, it would be a "sale," not a "donation."
Try again. I don't think you said what you think you said.
Weren't compensated means, "donation", not what you wrote.
Radwaste at November 25, 2013 6:10 PM
staff -- I'm going to assume you meant staph being short for Staphylococcus aureus, and more specifically MRSA. The prevalence for these diseases is not as bad as was listed and has dropped 54%.
Actually there is a cure for Hepatitis C. AIDS invades bone marrow so short of a marrow replacement it can't be cured currently. But the new Hep C drugs gives AIDS a 0% viral load to the point it can't be detected.
So now the question is what to do if you can't get an AIDS free marrow replacement.
Jim P. at November 25, 2013 6:28 PM
Jim, My mother's doctors have warned her to stay away from the hospital if at all possible. We have a three elderly relatives and friends who have contracted c-diff in either the hospital or a nursing home situation. Two just got really sick, the third one died.
Your fifty four percent reduction tells me nothing about what the actual rate of infection is, over all, or in any given hospital.
Like I said, it would be a risk I was willing to take for a close relative, but not for someone I was matched up to on an anonymous donor list, anymore, than I am going to go driving around without my seatbelt just because the odds are in my favor.
Isab at November 25, 2013 7:39 PM
Well, we could hope for change.
Or we could continue the clusterfuck as it stands.
http://www.cnn.com/2009/HEALTH/06/24/liver.transplant.priority.lists/index.html
Gog_Magog_Carpet_Reclaimers at November 25, 2013 10:03 PM
Isab,
Little piece of news that you may not be aware of: you are going to die some day too. The same as me.
The when, where, and how is probably going to different. But somehow I know it is going to happen.
The search to c-diff brings up this:
I.e. the person was sick with something and being treated because of that. Then the C. diff takes hold. What would the result of not being treated resulted in?There is a point at which the body just can't do it anymore no matter what we wish for.
Jim P. at November 25, 2013 10:56 PM
"Unlike blood donors, however, marrow donors cannot be compensated, which has led to shortages for patients with life threatening blood diseases and a waiting list of some 13,900."
We don't compensate blood doners up here, and the system seems to flow pretty well, despite a few major flaws having nothing to do with compensation.
wtf at November 26, 2013 7:46 AM
I.e. the person was sick with something and being treated because of that. Then the C. diff takes hold. What would the result of not being treated resulted in?
There is a point at which the body just can't do it anymore no matter what we wish for.
Posted by: Jim P. at November 25, 2013 10:56 PM
Yes, but using your logic we should not be doing bone marrow transplants at all, since most of them add months, not years to the average lifespan, and at a great cost to the healthcare system.
But I guess, for all of us little people Obamacare will take care of that, by making it pretty much unavailable, so no need to deregulate the bone marrow market.
And you know, an extra five good years looks pretty attractive when you are a healthy active 80 year old.
So yes, we all gotta die some day but I will save my altruism for my own pet causes.
Isab at November 26, 2013 9:29 AM
How do you get that from what I said? I was commenting on your statement about avoiding hospitals.
But there are some things that happen regardless of, or because of, the treatment you are receiving.
I'm all for bone marrow treatments, and compensation for replaceable items such as marrow, whole blood, or plasma. I would be against compensation for things like kidneys and other organs.
Jim P. at November 26, 2013 12:28 PM
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