We Don't Solve The Opioid Crisis By Creating A Crisis For Chronic Pain Patients
Melissa Sanders-Self has Stage-3 neuroendocrine cancer.
She writes in an op-ed in the LA Times that when she hears "the words 'opioid' and 'emergency' in the same sentence," she panics.
As she puts it about the suffering she goes through from cancer: "For me, not having opioids would be an emergency."
She explains that the opioid crackdown is making life untenable for chronic pain patients like her:
After undergoing surgery to remove my cancer tumors in 2014, I was prescribed hydrocodone. The medication was effective, but because I had heard about the dangers of using opioids, I tried to cut down and get off it several times during the first two years. Every time I tried, the pain returned. I couldn't focus or write cogent responses to my students' papers -- the pain was too acute.About a year ago, I went to my oncologist's office to get my prescription renewed and found that no one there was authorized to complete this routine task. I would have to wait three days until my doctor returned, I was told. In many places an opiate prescription can be renewed only by a doctor through special triplicate prescription forms or a phone call to the pharmacy -- a ridiculous thing to require of a busy oncologist.
I will never forget those three days of waiting. Without medication, I began to vomit, shake and cry. I couldn't concentrate, grade papers or function at all. I went through the kind of deep physical withdrawal Jamie Foxx portrays in the movie "Ray" when the real-life music legend he plays, Ray Charles, finally kicks heroin. And for what? I didn't plan to quit.
Trump has been vague about what specific measures he would adopt in a state of emergency, but it's clear that limiting prescriptions is becoming the preferred tactic across the country. Sens. John McCain and Kirsten Gillibrand have proposed legislation to limit new opioid prescriptions to seven days. New Jersey already has a five-day limit in place. Limits of three to seven days have been imposed in Arizona, Connecticut, Delaware, Maine, Massachusetts, New York, Pennsylvania, Rhode Island and Vermont.
Not all opioid users are destined to become heroin addicts, criminals or victims of overdose. For millions of people suffering from chronic, acute pain, regular life would be impossible without this medication. Limits on opioid prescriptions will harm patients like me. The American Medical Assn. understands this; it has warned that this "blunt, one-size-fits-all approach" takes treatment decisions away from doctors and patients. People who take opioids for long-term chronic pain need easier access to prescriptions, not more hurdles.
I have experience some of what she's going through with the nutty triplicate prescriptions that -- until very recently for my "Schedule 2" drug Adderall -- could only be picked up in person, with a prescription you had to hand the pharmacist.
I went through tremendous stress for many years -- like when the government shorted manufacturers on some of the ingredients needed to make it.
I had a near miss with death on the freeway when I had to make a mad dash on New Year's Day to some faraway pharmacy to get the last bottle of pills.
I can only guess what it must be like to go through this but while in chronic pain. There are those people who are called "brave" by their friends while they're dealing with some terrible disease.
Nobody would call me that -- not while I were dealing with even, say, a bad cold. (I'm verbally a badass, but physically, well, it's pathetic.)
Donald Trump's usual persona -- an 8-year-old know-it-all bully -- is especially harmful here. It's easy for people to assume that nobody needs X number of Vicodin or whatever a day.
As somebody who watched a dear friend, Cathy Seipp, suffer from terminal cancer, nobody had to worry that she would develop some harmful addiction. Actually, we would have given anything for her to live that long -- with the tradeoff being that she'd have to spend a few months in rehab.








So glad to see you highlighting this. I don’t have chronic pain, but there but for the grace of God go I.
Suzanne Lucas at October 25, 2017 10:15 PM
Exactly, Suzanne. I see it the same way -- just lucky that I don't have it.
Amy Alkon at October 25, 2017 10:18 PM
If Trump actually declares a national emergency because some people are addicted to vicodin, he goes back to a D grade from me. I though national emergencies were for wartime, 9/11-style attacks, major natural disasters, a cosmic storm or EMP event, etc.
mpetrie98 at October 26, 2017 2:10 AM
Keep fighting the good fight, Amy... Your cause is just, but the forces arrayed against you are growing.
And it didn't seem that way just a few years ago! For most of the last three decades, American hospitals were moving in a direction of sincere but proficient attention to how people feel in that most important of all perspectives. And I'm grateful that so many friends and loved ones, if they had to pass away early, passed away in the shelter of that social change. Maybe the nurses (about three of them come to mind) weren't merely compassionate in their metronomic and continuing inquiries about relative suffering, but they always looked the patient in the eye as they asked... If only because they had to remember what to put on the chart once they got back to the desk.
Drug warriors & busybodies on the right and the left have taken over our nation in this century. These are people who enjoy punishing the silly for drug about more than they like reliving the sickly from their torment.
Etc.
Sucks!--- America was really looking pretty good there for a while.
Crid at October 26, 2017 6:29 AM
There are few things politicians should be less involved in than other people's use of medications. Especially medications that are used to relieve pain. Why is it so hard for them to understand that it's none of their business?
Ken R at October 26, 2017 9:11 AM
Crid, it seems to me like we have lurched back and forth between sex moral panics and drug moral panics for the past three decades. First we had the "Waaaaarh! on Drugs" starting in the mid-80s. Then we had satanic-child-sex-ring panic in the '90s. Then, a little later that decade, we had the drinking-and-driving panic. (Not that I'm not talking about drunk driving... I'm talking about when it morphed into a temperance movement, with pressure groups demanding that the blood-alcohol standard for drunk driving be lowered to 0.02 or something equally ridiculous.)
Now we've got the campus-rape moral panic, but it appears that it's starting to wind down, with Jerry Brown vetoing a "yes means yes except when it means no" sex bill in California, and the Education Department retracting the Obama-era regulations. So I guess it's time for another drug moral panic.
Cousin Dave at October 26, 2017 9:13 AM
And there was Tipper Gore and the PMRC... how could I have forgotten that. I guess that one was a twofer, a moral panic over both sex and drugs, as well as rap music (back when rap was fun).
Cousin Dave at October 26, 2017 9:15 AM
My cousin died by overdosing on his prescription painkillers after a major surgery.
And I still agree with everything in this post. It drives me insane to see some of my relatives posting/sharing stuff on Facebook about how we need to "crack down" on opioid abuse by "limiting access" or whatever. And doing it in his memory.
People need to work and function to support themselves and their families, even after their knees/shoulders are ripped off and reattached. Even though they have cancer. They need effective painkillers to do that. Unless you're willing to house someone for months and pay all their living expenses while they sit in your home basically catatonic from pain, you don't get to say anything about "limiting access."
sofar at October 26, 2017 9:25 AM
We don't?
I thought that was how we do things in this country - with overblown panic and outrage.
I can't get Sudafed in the drug store anymore because some dirtbag might boil it in kerosene and ingest the results.
Conan the Grammarian at October 26, 2017 10:06 AM
I never had a problem when I was given opiods, and perhaps my never becoming addicted (or even craving these drugs) has a genetic component.
I was given an entire bottle of 40 pills of Vicodin once, following some minor surgery. I took one half of one pill, decided I didn't like the sensations and never took any more.
I wonder if technology could devise a way to give those with chronic pain (if they've indicated in the past that they abuse these drugs) a device that dispenses the appropriate number of pills automatically at the appropriate intervals. Obviously, such a devise would need to be tamper resistant and perhaps be equipped with an alarm system that notifies the authorities should anyone attempt to tamper with it.
It would probably be too easy to hack into.
Conan, got a huge laugh out of your last sentence. It's sounds perfectly disgusting, and I don't know if what you said is actually true. But if you're off, it's probably not by much. I've heard of people using liquid pool cleaners for muscular enhancement.
Patrick at October 26, 2017 10:35 AM
I'm an addict, every guy older than my mother on her side of the family was a drunk, most of the guys older than me were drunks.
I noticed addictive personality traits in my behavior as a teenager and were it not for a, some would say pathological, drive to be in control of myself I'd probably be dead.
Quite frankly I doubt anyone who is not an addict can ever really understand why addicts choose to get high, I know I didnt until I was put on morphine after having part of my lung cut out, but I sure as hell did after. And two days was long enough to make it feel like a was being devoured by fire ants when I went off it
But I've also run the math - for every person who dies of a prescription painkiller overdose, FORTY TWO die from complications from diabetes. So why isnt there a sugar epidemic?
lujlp at October 26, 2017 3:53 PM
I read the transcript of the GEOTUS statement. I think you're mistaken, Amy, in judging this call for declaration of a public health emergency as a mobilization against cancer patients under properly-prescribed pain medication. You might be a Cloud Person, unaware of what's going on with us Dirt People in Flyover Country. Fentanyl and herion are everywhere, but their users aren't funny like methheads, and so their uniquity and deadly effect among Dirt People seem to escape the attention of Cloud People.
Here's a day in the life, a couple of deaths reported in the NY Daily News:
http://m.nydailynews.com/news/crime/pa-couple-found-dead-overdoses-daughter-alerts-school-article-1.2817758
There's a story or two like that every week in every county in Flyover Country. It would be very, very good to diminish this kind of destructive addiction. I'm glad GEOTUS is taking a shot at it, and pleased he's talking public health vectors, not police state tactics.
I hope and trust that no Cloud People will be unduly disturbed in their prescribed comforts.
Mike G at October 26, 2017 4:54 PM
It doesn't matter Mike. If they can't get opioid they will get something else that does the exact same thing. We've been around this loop far too many times. You can't stop people from killing themselves. It just doesn't work.
Ben at October 26, 2017 5:24 PM
Maybe if they heavily restrict or ban the use of opiates they can prevent the addiction and deaths related to the misuse of opiates. Kind of like how outlawing heroin, which is an opiate, has prevented addiction and death related to the use of heroin. Kind of like that.
Ken R at October 26, 2017 9:41 PM
sofar: "Unless you're willing to house someone for months and pay all their living expenses while they sit in your home basically catatonic from pain, you don't get to say anything about 'limiting access'."
No, you have to do better than that. Unless you're able and willing to relieve their pain, whatever type of pain it is, you don't get to say anything about limiting their access to whatever they think makes it better.
Ken R at October 26, 2017 9:46 PM
lujlp: "for every person who dies of a prescription painkiller overdose, FORTY TWO die from complications from diabetes. So why isnt there a sugar epidemic?
That's a good point. Diseases related to obesity and the misuse and abuse of food kill many times more people than opiate abuse. And the percentage of food consumers who suffer harm and death due to the abuse food is way higher than the percentage of opiate users who abuse opiates.
No politician, social welfare advocate or moral do-gooder whose BMI is higher than 24.9 should ever even suggest that someone else's access to a potentially unhealthy substance or product they find beneficial should be restricted or prohibited.
Economic impact, loss of life, and misery related to alcohol abuse and food abuse are both many times higher than for prescription painkillers.
Ken R at October 26, 2017 10:04 PM
"There's a story or two like that every week in every county in Flyover Country. It would be very, very good to diminish this kind of destructive addiction. I'm glad GEOTUS is taking a shot at it, and pleased he's talking public health vectors, not police state tactics."
I live in some of the flyoverest-flyover country in the U.S. I see what you're talking about. But the fundamental problem isn't drugs; that's just a symptom. The problem is the complete and utter breakdown in culture out in the sticks (and in a lot of towns). I've been watching it gradually unfold since the late 1970s. It was happening well before prescription opioids existed, and banning said opioids would not make any difference.
Cousin Dave at October 27, 2017 6:42 AM
And I meant to add: If we go down that path, it will indeed evolve/devolve into police state tactics. The last War on Drugs gifted us with the Constitutional abortion known as "civil forfeiture", one of the worst abuses of government power ever inflicted on hapless American citizens. And it's still with us three decades later.
Cousin Dave at October 27, 2017 6:45 AM
Patrick, people metabolize drugs differently, and even the same person can metabolize the same drug at a different rate if other factors change, for instance if other drugs are added or removed from the regimen, if the method of delivery is changed (pill or patch or intravenous), or if organ function changes.
The patient's personal feedback is the best indicator of what's working. That feedback might not be reliable but there's no more accurate measure of effectiveness.
Michelle at October 27, 2017 8:21 PM
And yet, in some areas, doctors are practically throwing drugs at patients. We have a shocking stash of pain narcotics in our house from dental work, miscarriages, surgeries, etc., over the past few years. We took what we needed and stashed the rest.
I had dental surgery recently. My dentist offered me a sedative during the procedure and hydrocodone afterward. I turned down the sedative because I had to drive, and I never needed the hydrocodone at all. I don't doubt some people experience pain differently, and I'm glad it's available to them, but I'm really surprised by how much my husband and I have been offered.
MonicaP at October 27, 2017 8:29 PM
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